Comments on: frozen pea friday: researching tamoxifen

By: Ellie - skin needling roller expert

Ellie - skin needling roller expert — Wed, 18 Mar 2009 16:31:19 +0000

Unfortunately my Aunty had breast cancer they managed to remove the cancer in her breast but then later she was diagnosed with a tumour on her brain which started to bleed, she died just a few days ago. It shows just how important it is to have any abnormalities checked out by the doctor as she didn’t get diagnosed until it was too late

By: isabella mori

isabella mori — Mon, 08 Sep 2008 20:28:58 +0000

patricia, i wish i could say something about this but i’m just about in the dark as you are. have you discussed it with your doctor?

By: Patricia Kal

Patricia Kal — Mon, 08 Sep 2008 17:07:12 +0000

I had a mastectomy 10 years ago with a tram flap reconstruction. I was on tamoxifen for 5 years and finished 5 years ago. I am now 74 years old and about a year ago I noticed the fatty tissue and muscle in my arms and legs has gone. The skin just hangs. Is this something I have to live with for the remainder of my life because I took Tamoxifen? I’m not complaining, just asking.
I have been active and exercised (usually aerobic & weights) all my life and I still exercise with 5 & 8 lb weights every other day and it doesn’t seem to help. Could this be because I don’t manufacture any more estrogen? I have never weighed more than 135 to 140 my entire life except when I was pregnant and then both times I only weighed 165 lbs.

By: Sylvie Fortin

Sylvie Fortin — Mon, 14 Apr 2008 21:45:55 +0000

In my case, I’ve been prescribed two hormone suppressants, which I think I’ll be on for many years.

The first suppresses estrogen in my ovaries. It is a needle shot I get in my abdomen every 10 weeks. (It costs over $1000 for one tiny shot!)

That I will be receiving until I get my ovaries removed. (Hopefully sooner, rather than later!)

The second is a daily dose of Femara, which suppresses estrogen that comes from my adrenal glands (who knew estrogen came from two places?)

And as far as I know, I’ll be on that for at least 10 years.

You know what’s funny? I have never been a “pop pills” kind of gal. I now have a complete medical team at my beck and call, a plethora of medicines to take, and all are apprecently meant to keep me healthy.

I am remarkably healthy, always have been, well…except for this pesky breast cancer. LOL

Sylvie Fortin’s last blog post..One Year Since My Mastectomy