Comments on: the ashley treatment: what we need is compassion and humility http://www.moritherapy.org/article/ashleys-treatment-what-we-need-is-compassion-and-humility/ making lives better, making better lives Fri, 19 Mar 2010 11:16:53 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: isabella mori http://www.moritherapy.org/article/ashleys-treatment-what-we-need-is-compassion-and-humility/comment-page-1/#comment-517241 isabella mori Thu, 21 Aug 2008 22:01:31 +0000 http://www.moritherapy.org/article/ashley%e2%80%99s-treatment-what-we-need-is-compassion-and-humility/#comment-517241 thanks for leaving this comment, CC. what you describe is one of the reasons why i don't work with children. i can hear the most atrocious things about adults but children - no, i just can't watch them going through this. and the parents ... god bless them. thanks for leaving this comment, CC.

what you describe is one of the reasons why i don’t work with children. i can hear the most atrocious things about adults but children – no, i just can’t watch them going through this. and the parents … god bless them.

]]> By: ClinicallyClueless http://www.moritherapy.org/article/ashleys-treatment-what-we-need-is-compassion-and-humility/comment-page-1/#comment-516914 ClinicallyClueless Thu, 21 Aug 2008 12:53:32 +0000 http://www.moritherapy.org/article/ashley%e2%80%99s-treatment-what-we-need-is-compassion-and-humility/#comment-516914 This was very interesting since I had been working in the field of developmental disabilities for 17 years. I had very mixed feelings about her treatment and haven't quite sorted them out. There are definitely two sides, her parents and the ethics and Ashley's rights about the surgeries. There are many more issues. But, parents with a disabled child have so many decision and worries. It often ends up that the father fades out of the picture or divorces and that it becomes a "dysfunctional" family in that attention and decisions for the family are usually made around the child with a disability. Then, you add the on-going losses which many parents do not process through. At each developmental milestone is a loss of what could have been beginning from birth. Can you imagine grief on top of grief for the rest of your life. It may be minimal at times, but it is there and most parents do not acknowlege it. Not, to mention guilt and blaming, the siblings, etc... I loved my work, but I couldn't work with the children too often because it was so heart breaking. Regardless of what Ashley's treatment was, he parents had and will continue to have tough decisions. My heart really goes out to them and to Ashley, but I think she has the better deal because she looks and sounds so happy. This was very interesting since I had been working in the field of developmental disabilities for 17 years. I had very mixed feelings about her treatment and haven’t quite sorted them out. There are definitely two sides, her parents and the ethics and Ashley’s rights about the surgeries. There are many more issues. But, parents with a disabled child have so many decision and worries. It often ends up that the father fades out of the picture or divorces and that it becomes a “dysfunctional” family in that attention and decisions for the family are usually made around the child with a disability. Then, you add the on-going losses which many parents do not process through. At each developmental milestone is a loss of what could have been beginning from birth. Can you imagine grief on top of grief for the rest of your life. It may be minimal at times, but it is there and most parents do not acknowlege it. Not, to mention guilt and blaming, the siblings, etc… I loved my work, but I couldn’t work with the children too often because it was so heart breaking. Regardless of what Ashley’s treatment was, he parents had and will continue to have tough decisions. My heart really goes out to them and to Ashley, but I think she has the better deal because she looks and sounds so happy.

]]> By: karen http://www.moritherapy.org/article/ashleys-treatment-what-we-need-is-compassion-and-humility/comment-page-1/#comment-8662 karen Fri, 19 Jan 2007 03:14:18 +0000 http://www.moritherapy.org/article/ashley%e2%80%99s-treatment-what-we-need-is-compassion-and-humility/#comment-8662 I admit I reacted harshly toward Ashley's parents when i first heard about what they had done. But in digging deeper to the story when I covered it for an online magazine I write for, I was able to apply the knowledge I carry regarding my own disabled son, that sometimes parents make choices involving their children that they never thought would be anywhere close to their lexicon of parenting, simply because they were able to detach from that and to instead follow the lead given by the child. And then I was unable to judge them, because who am I? I am not living that life. I have a friend whose daughter died of medical complications from a similar massive set of issues. Who knows what choices she would have been faced with as her daughter aged, had she lived? This is such a wonderful lesson that we each walk only our own path, nothing more and nothing less. I admit I reacted harshly toward Ashley’s parents when i first heard about what they had done. But in digging deeper to the story when I covered it for an online magazine I write for, I was able to apply the knowledge I carry regarding my own disabled son, that sometimes parents make choices involving their children that they never thought would be anywhere close to their lexicon of parenting, simply because they were able to detach from that and to instead follow the lead given by the child. And then I was unable to judge them, because who am I? I am not living that life. I have a friend whose daughter died of medical complications from a similar massive set of issues. Who knows what choices she would have been faced with as her daughter aged, had she lived? This is such a wonderful lesson that we each walk only our own path, nothing more and nothing less.

]]> By: healthybpm http://www.moritherapy.org/article/ashleys-treatment-what-we-need-is-compassion-and-humility/comment-page-1/#comment-8343 healthybpm Tue, 16 Jan 2007 07:15:17 +0000 http://www.moritherapy.org/article/ashley%e2%80%99s-treatment-what-we-need-is-compassion-and-humility/#comment-8343 It's a story that hurts Isabella. Nothing is in our hands. And still we live our petty lives with our petty misgivings and hope that some day we will do something meaningful. It’s a story that hurts Isabella. Nothing is in our hands. And still we live our petty lives with our petty misgivings and hope that some day we will do something meaningful.

]]> By: Elena http://www.moritherapy.org/article/ashleys-treatment-what-we-need-is-compassion-and-humility/comment-page-1/#comment-8305 Elena Mon, 15 Jan 2007 20:16:31 +0000 http://www.moritherapy.org/article/ashley%e2%80%99s-treatment-what-we-need-is-compassion-and-humility/#comment-8305 Well said! Well said!

]]>